Read time ~8 mins At the Horizon CDT retreat last week I delivered a presentation about my research interests to some of my comrades as well as various academics who were either my supervisors, the CDT directors or, other people’s supervisors. Like with most of my presentations I just get stuck in with building some…
Category: Online with IBD
Free Health Apps
* Full Disclaimer: I am not a lawyer, but I am a healthy sceptic/critic of privacy policies. My PhD research focuses on notions of informed consent and data trade-offs. I recently read this post by Jen that reviews the Gut Health Storylines app. A mobile application by Self Care Catalysts (SCC) for people living with…
DML Ignite
In the very likely event that I don’t make myself clear in my ignite at DML …….. Today I talked about the Inflammatory Bowel Disease community, in which there is a culmination of people from different backgrounds who live on a day-to-day basis with Crohn’s or Ulcerative Colitis. It’s not considered a ‘rare’ disease, but…
Self-surveillance and memory
I often talk about the idea of surveillance and ‘dragnets’ and often I am talking about other people surveilling us. What I have been thinking about recently is our ability to self-surveil and interpret. Something that the digital affords is memory: transactions and files are stored in a binary computer readable format that can be…
#PrivacyUG Session One reflections
This week marked the first of three #privacyUG sessions. #privacyUG stands for “privacy underground” and it is an open and connected class around privacy. I called it underground because I wanted to add intrigue and fun into the sessions so that anyone physically attending would have to follow the cryptic instructions about how we can…
Engineered Digital Habits
“to share anything they want with anyone they want in a natural way” – Mark Zuckerberg, 2016 – On the back of Facebook’s annual conference, it was this line that has stuck out for me. The belief that our online networks and connections are considered as natural as speaking face-to-face. These semantics do not come…
Opening the backdoor to vulnerable communities
“We don’t know how to make a backdoor that only good guys can go through” Cory Doctorow I hope that the debate over the Investigatory Powers bill is common knowledge. I know that I am particularly concerned about my online privacy and security so much so I am often met with a lot of resistance…
Probiotic-ful
I think everyone I see regularly is starting to get a little tired of me babbling on about probiotics. But I managed to brew/ferment/culture my best yoghurt batch yet, bursting with probiotic goodness and I can’t help but tell everyone. Weekend of wellbeing: taking care of my inner tube with low FODMAP diet and probiotics…
IBD by Association
I am very aware just how transparent my digital identity is; I have consciously chosen to share (an embarrassing amount of) pictures and thoughts about education, Crohn’s and photography. I try not to share too much else, if I can help it (but I share more than I probably should). I have met people online…
MySpace Profile
I just logged into MySpace for the first time in years. Until today, I thought that I was only an active blogger since starting university in 2011; but that’s absolute rubbish- I’ve been blogging since 2007. I just downloaded and read all of my blog posts from my adolescence and it is what you would…